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References For Families & Professionals

References For Families & Professionals

Aaltonen, J., Seikkula, J., &Lehtinen, K. (2011). The Comprehensive Open-    Dialogue Approach in Western Lapland: I. The incidence of non-affective psychosis and prodromal states. Psychosis, Social and Integrative Approaches, 3:3, 179-191.

Awad, G., &Voruganti, LNP. (2008). The Burden of Schizophrenia on Caregivers, A Review. Pharmacoeconomics, 26(2):149-62.

Bertrando, P. (2006). The evolution of family interventions for schizophrenia, Tribute to Gianfranco Cecchin. Journal of Family Therapy, 28, (1).

Berzoff, J. (2006). Narratives of Grief and Their Potential for Transformation. Palliative and Supportive Care, 4 (2).

Bloch, S., Szmukler, G.I., Herrman, H., Benson, A., &Colussa, S. (1995). Counselling Caregivers of Relatives with Schizophrenia: Themes Interventions and Caveats. Family Process, 34: 413-424.

Boss, P. (2010). The Trauma of and Complicated Grief of Ambiguous Loss. Pastoral Psychology, 59:137-145.

Brosnan, L. (2003). What Part of the Picture? Perspectives of Service Users and Carers on Partnership Within the Mental Health Services, NSUE, Carers on Partnership within the Mental Health Services, Report by the Western Alliance for Mental Health.

Burbach, F., &Standbridge, R.I. (2006). Somerset’s Family interventions in Psychosis Service: an update. Journal of Family Therapy, 28, (1), 39-57.

Burnell, K., Charlesworth, G., Feast, A,. Hoe, J., Poland, F., & Orrell, M. (2012). Peer Support Interventions for Family Carers of Adults with Chronic Mental and Physical Illness who are living at Home. Cochrane Library.

Carpenter, L., Austin, H. (2007). Silenced, Silence, silent: Motherhood in the Margins, Qualitative Inquiry, 13 (5): 660-674.

College of Psychiatrists of Ireland.  Recovery: Supporting Personal Recovery:  The Role of the Psychiatrist  https://www.irishpsychiatry.ie/wp-content/uploads/2021/03/Recovery-Supporting-Personal-Recovery-The-Role-of-the-Psychiatrist.pdf

Cook, J. (1998). Who “Mothers” the chronically mentally Ill? Family Relations, 37: 42-49.

Cooke. A ed. (2017). Understanding Psychosis and Schizophrenia, Division of Clinical psychology, British Psychological Society.

Eassom, E., Giacco, D., Dirik, A., & Priebe, S. (2014). Implementing Family Involvement in the Treatment of Patients with Psychosis: a Systemic Review of Facilitating and Hindering Factors.British Medical Journal Open, 4 (10).

Eufami. (2015). Experiences of Family Caregivers of Persons with Severe Mental Illness: An International Exploration, Lauwers, H., Spruytte, N., Van Audenhove, C., Magro, C, Saunders, J., & Jones, K.

Fadden, G. (1988). Research Update: Psycho educational Family Interventions. The Association for Family Therapy, 20: 293-309.

Falloon, I.R.H., Boyd, J.L., McGill, C.W., Razani, J., Moss, H.B., &Gilderman, A.M. (1982). Family Management in the Prevention of Exacerbation of Schizophrenia. New England Journal of Medicine, 306:1437- 1440.

Family Carers Ireland:   PAYING THE PRICE – The Physical, Mental and Psychological IMPACT OF CARING https://www.irishpsychiatry.ie/wp-content/uploads/2019/05/Paying-the-Price-The-Physical-Mental-and-Psychological-Impact-of-Caring.pdf

Farrelly, S., Lester H., Rose, D., Birchwood, M., Marshall, M., Waheed,W.,  Jacobson, N., Greenley,D. (2001). What is Recovery a Conceptual Model and Explication,Psychiatric Server,52 (4):482-5.

Ferriter, M. &Huband, N. (2003). Experiences of Parents with a Son or Daughter with Schizophrenia. Journal of psychiatric Mental Health Nursing, 10(5), 552-60.

Geraghty, K, Mc Cann, K. King, R., & Eichmann, K. (2011). Sharing the Load: Parents and carers talk to consumer consultants at a child and youth mental health inpatient unit. International Journal of Mental Health Nursing, 20: 253-2362.

Greenberg, J. S., Greenley, J. R., McKee, D., Brown, R., & Griffin-Francell, C. (1993). Mothers Caring for an Adult Child with Schizophrenia: The Effects of Subjective Burden on Maternal Health. Family Relations, 42(2): 205-211.

Greenberg, J. S., Greenley, J. R., & Brown, R. (1997). Do Mental Health Services Reduce Distress in Families of People with Serious Mental illness? Psychiatric Rehabilitation Journal, 2(1), 40-49.

Hager, T. (2011). Making Sense of an Untold Story: A Personal Deconstruction of the Myth of Motherhood. Qualitative Inquiry, 17:35-44.

Hatfield, A. B., & Lefley, H. P. (1987). Families of the Mentally Ill: Coping and Adaption. New York: Guildford University Press.

Henderson RC.,Szmukler, G. (2016). Barriers to shared decision making in mental healthcare: qualitative study of the Joint Crisis Plan for psychosis.,  Apr; 19(2):448-58.

Hinshaw , S ed ( 2008) Breaking the silence: Mental Health professionals disclose their personal and family experience of Mental health difficulty, Oxford University press.

Hogarty, G.E., Anderson, CM., Reiss, DJ., et al. (1986). Family Psychoeducation, Social Skills Training, and Maintenance Chemotherapy in the Aftercare Treatment of Schizophrenia, One-Year Effects of a controlled Study on Relapse and Expressed Emotion. Archives of General Psychiatry, 43: 633-642.

Irish Health Research Board. (2006). O Doherty, Y. K.,   Doherty, D,T and Walsh D, Family support study: A study of Experiences, Needs and support Requirement of Families with Enduring Mental Health Difficulty,

Jacobson, N & Greenley, D (2001) What is Recovery, A conceptual model and explanation. Psychiatric Services, 52(4).

Jewell, T.C. (2000). Adult Siblings of People with a Serious Mental Illness: the Relationship between Self and Sibling Care Beliefs and Psychological Adjustment. Dissertation Abstract Int, 60(11B), 5776.

Jones, D. W. (2004). Families and Serious Mental Illness: Working with Loss and Ambivalence. British Journal of Social Work, 34 (7), 961-979.

Larkin, M. (2009). Life after Caring the Post Caring Experiences of Former Carers. British Journal of Social Work, 39(6): 1026-1042.

Larson M.K., Walker, E.F., Compton, M.T. (2010) Early signs, diagnosis and therapeutics of the prodromal phase of schizophrenia and related psychotic disorders. Expert review of neurotherapeutics, 10(8):1347-1359.

Lavis, A., Lester, H., Everard, L., Freemantle, N., Amos, T., Fowler., & D. Birchwood, M. (2015). Layers of Listening: Qualitative Analysis of the impact of Early Intervention Services for first Episode Psychosis on Carers’ Experiences. British Journal of Psychiatry, 207 (2): 135-143.

Leamy, M. et al (2011) Conceptual framework for personal recovery in mental health: systematic review and narrative synthesis. British Journal of Psychiatry, 199(6), 445–452. https://doi.org/10.1192/bjp.bp.110.083733

Lee, D. (2014) Recovering from Trauma using Compassion Focused Therapy using Compassion Focused Therapy 2nd edn. London: Robinson.

Leff, J, Kuipers, L. Berkowitz, R, Sturgeon, R. (1982) A Controlled trail of social Intervention in Families of Schizophrenic : Patients a two year Follow up. British Journal of Psychiatry, 141 (2)594-600.

Legatt, M., Woodhead, G. (2015). Family Peer Support Work in an Early Intervention Youth Mental Health Service. Early intervention in Psychiatry.

Lidz,T., Parker, B.,&Cornelison, A .(2006). The role of the Father in the Family Environment of the Schizophrenic Patient Retrieved from https://doi.org/10.1176/ajp.113.2.126

Loumpa, V. (2012) Promoting recovery through Peer support, possibilities for Social Work Practice. Social Work Health Care 51 (1).

Lucksted, A., Steevenson, J., Nossel,l., Drapalski, A., Piscitelli, S., &Dixon, L.B. (2018) (2018). Family member engagement with early psychosis specialty care. Early Intervention in psychiatry 12(5).

Malone, J. (1993) Beyond Blame and Shame, Families Coping with Long Term Mental Illness. New Directions for Mental Health Services, no 59

Marlow, M. H. (2009) Narrative approaches to recovery oriented psychotherapy retrieved from https://scholarworks.smith.edu/cgi/viewcontent.cgi?article=2291&context=theses

Maté, G. & Maté, D. (2022) The Myth of Normal : Trauma, Illness & Healing in a Toxic Culture. London: Vermillion.

Maté, G. (2014) When the Body Says No: The Cost of Hidden Stress. London: Vermillion.

Mc Auliffe, R., O Connor, L., & Meagher, D. (2014). Parents Experience of Living with and Caring for an Adult son or Daughter with Schizophrenia at Home in Ireland: a qualitative study. Journal of Psychiatric and Mental Health Nursing, 21 (2): 145-153.

Mc Cann, V., Lubmann, D.I., & Clark, E. (2009) First –Time Primary Caregivers’ Experience of Caring for Young Adults with First –Episode Psychosis. Schizophrenia Bulletin, 37(2).

Milliken, P.J. (2001). Disenfranchised Mothers: Caring for an Adult Child with Schizophrenia. Health Care for women International, 22 (1-2): 149-166.

Morton, R.D., White, M.D., & Young, R. (2015) Posttraumatic Growth in Family Members Living with a Relative Diagnosed with Schizophrenia. Journal of Loss and Trauma, 20 (3).

Neimer, R.A., Burke, L.A., Mackay, M.M, & Van Dyke Stringer, J.G. (2009).    Grief Therapy and the Reconstruction of Meaning from Principals to Practice.  Journal of Contemporary Psychotherapy, do 10.1007/s10879-009-9135-3s;//doi.org/10.1093/schbul/sbp085.

Norton MJ, Cuskelly K. Family Recovery Interventions with Families of Mental Health Service Users: A Systematic Review of the Literature. Int J Environ Res Public Health. 2021 Jul 25; 18(15):7858. doi: 10.3390/ijerph18157858. PMID: 34360150; PMCID: PMC8345647.

Nyström, M., &Svensson, H. (2004.) Lived Experience of Being a Father of an Adult Child with Schizophrenia. Issues in Mental Health Nursing, 25 (4).

O Brien, M (2007) Ambigious Loss in Families of children with Autism Spectrum Disorders, Family Relations. 56 (2).

Obrochta, C., Anthony, B., Armstrong, M., Kallal, J., Hust, J., &Kernan, J. (2011). Issue brief: Family-to- family peer support: Models and Evaluation. Atlanta, GA: ICF Macro, Outcomes Roundtable for Children and Families.

Owen, M.J, O Donovan, M.C, Thapar, A., Craddock, N. (2011) Neurodevelopment Hypothesis of schizophrenia. British Journal of Psychiatry 198(3).

Okasha, A. (Eds) (2005). Families and Mental Disorders from Burden to Empowerment, England: Wiley.

Olin. , S. S., Shen, S., Rodriguez, J., Raddigan, M., Burton, G., & Hogwood, K. E. (2015). Parent Depression and Anger in Peer Delivered Support Services. Journal of child Family Studies, 24: 3383-3395.

Ostman, M. &Kjellin, L. (2002). Stigma by Association: Psychological Factors in Relatives of People with Mental Illness. British Journal of Psychiatry, 181: 5.

Outram, S, Harrris, G., Kelly, B., Bylund,C., Cohen, M., Landa,Y,. Loughland, C. (2015). We didn’t have a Clue: Family Caregivers Experiences of the communication of a Diagnosis of Schizophrenia. International Journal of Social Psychiatry, 61(1).

Ozgul, S. (2004). Parental Grief and Serious Mental Illness. A Narrative. Australian and New Zealand Journal of Family Therapy, 25(4): 183-187.

Phares , V.(1992). Make Room for Daddy, Psychological The Role of Fathers in Child and Adolescent Psychopathology: Make Room for Daddy Bulletin, 3 (3), p 387-412.

Pharoah, F., Rathbone, F. M., Wong, W. (2010). Family Intervention for Schizophrenia. Cochrane Collaboration. Cochrane Library, issue (11).

Pickette- Schnek, S, Lippincott, R.C., Bennett, C., Steigman, P. J. (2008). Improving Knowledge About Mental Illness Through Family –Led Education: The Journey of Hope. Psychiatric Services, 59: 49-56.

Ratnarahah, D., Mapel, M., &Minichiello, V. (2014). Understanding Family Members Suicide Narratives by Investigating Family History. OMEGA, 69 (1): 41-57.  Retrieved from developingopendialogue.com/w content/uploads/2015/04/Context138-Fox.

Supporting Personal Recovery- The Role of the Psychiatrist.  Available at

Richardson, M., Cobham, V., Mc Dermott, B., & Murray, J. (2013).Youth Mental Illness and the Family: Parents Loss and Grief. Journal of Child and Family Studies, 22: 719-736.

Ripper, J., & Carter, T. (2011). A Review of the Literature on Peer support in Mental Health Services. Journal of Mental Health, 20, 392-411.

Saunders, J.C. (2003) Families Living with Severe Mental health Difficulty; A Literature Review, Issues in Mental Health Nursing.24: 175-198.

Schneider, B. (2005). Mothers Talk About Their Children with Schizophrenia: Performance Auto ethnography, Journal of Psychiatric and Mental Health Nursing. 12: 333-340.

Seikkula, J., Aaltonen, J., Alakare, B., Haarakangas, K., Keränen, J., &Lehtinen, K. (2007). Five-year experience of first-episode non affective psychosis in open-dialogue approach: Treatment principles, follow-up outcomes, and two case studies. Psychotherapy Research, 16:2, 214-228.

Seikkula,J.,  Alakare, B., Aaltonen, J. (2011) .Open Dialogue in Psychosis 1, An introduction and Case illustration. Journal of Constructivist Psychology 14(4).

Shepherd, G., Murray, A., & Muijen, M. (1994) Relative Values: The Differing Views of Users, Family Carers and Professionals on Community Services for People with Schizophrenia. London, The Sainsbury Centre for Mental Health.

Shine (2011) Family Education: Recovery and the Family,

Stanbridge, R., Burbach,F., Lucas, A &  Carter, K. (2003). A Study of families’ satisfaction with Family Intervention in Psychosis Service in Somerset. Journal of Family Therapy, 25(2)

Stern, S., Doolan, M., Stapels, E., Szmukler, G., &Eisler, I. (1999). Disruption and Reconstruction: Narrative Insights into the Experience of Family Members Caring for a Relative Diagnosed with Serious Mental illness. Family Process, 38: 353-369.

Tarrier, N., Barrowclough, C., Vaughn, C., Bamrah, J.S., Porceddu, K., Watts, S., & Freeman, H.L. (1988). The Community Management of Schizophrenia: A controlled trial of a Behavioural Intervention with Families to Reduce Relapse. British Journal of Psychiatry, 153:532-542.

Tennakoon, L., Fannon, D., Doku, V., O Ceallaigh, S., Soni, W., Santamaria, M….Sharma, T. (2000). Experiences of Care Giving: Relatives of People Experiencing First Episode Psychosis. The British Journal of Psychiatry, 177 (6);

Walker, M. T. (2006). The Social Construction of Mental Illness and its Implications for the Recovery Model. International Journal of Psychosocial Rehabilitation, 10(1): 71-87.

Warner, R., & Herrman, H. (2011). Partnership for a Better Mental Health worldwide: WPA Recommendations on Best Practices in Working with Service users and Family Carers. World Psychiatry, 10 (3): 229-236.

Watson, D. P. (2012).  The Evolving Understanding of Recovery: What Sociology of Mental Health has to offer .Humanity and Society, retrieved from https://www.ncbi.nim.nih.gov.

White, M. (1987).  Family Therapy and Schizophrenia: Addressing in the corner Lifestyle.  Dulwich Centre Newsletter, spring, pp.14-21. Republished 1989 in White, M.: Selected Papers (chapter 4), pp.47-57. Adelaide: Dulwich Centre Publications.

White, M. (2012) Trauma and Narrative Therapy- Michael White video Part One https://vimeo.com

White, M, Kingsley White, M. Wijaya, M., & Epsom, D. (1990). Narrative Means to Therapeutic Ends,Norton& Company.